AND ANOTHER THING— nobody talks about how unspeakably demoralizing it is to spend every day in incapacitating pain and then have a whole team of doctors pass the buck and refuse to help you because “you’re too young to get started on that”
abled ppl can choose to recognize we're serious despite age. they can choose to care instead of talk over us. they can ask what we need&listen. they can amplify our voices&advocate for us when we're too tired to advocate for ourselves 5/5 #DisabilityHasNoAgeRequirement
I can't remember life "before" pain&fatigue. as a pre/teen I complained daily abt pain&tiredness & was told to change my diet, exercise, stop coffee, etc. drs didnt even take my chest pain seriously&I grew scared to be seen for anything ever #DisabilityHasNoAgeRequirement 1/
I'm 21 with SLE(Lupus). I'm sunsenstive due to it, I often to have to sit in the car while my mother packs the car with groceries.I see your death stares, your whispers, the little "jokes" you say to mum isn't funny. I'm NOT lazy. I'm not spoiled.
I was diagnosed with autism and fibromyalgia my senior year of hs. My favorite teacher:
"Why would you need to help now? You do fine." Yeah but it's painful to do!
Or the time old white ladies reported me for sitting at work and I got fired.